Back in the Hospital.

 This post is a little late, but I will tell, you get so exhausted that when an ordeal is all over you don’t even want to talk about it.

Last tues. Logan was really upset about something.  He appeared to be in a lot of pain and was completely inconsolable.  He was also vomiting with every feed and screaming so hard that he could barely breathe.  So we took him to the ER at about 7pm on Tues. evening.  We took him to a Akron Children’s hospital ER but one that was right up the road and not connected to the actual hospital. Well this whole situation was way too much for them.  I explained his condition and they just really freaked out.  They didn’t know what to do or how to proceed so they kept calling the ER Dr. at the Children’s hospital to find out what to do.  They had him transferred to Akron Children’s hospital after multiple failed attempts at getting an IV in.  At one point my husband yelled stop because it was like a 3 stooges episode with these nurses.  Logan was so worked up he couldn’t breath, he was aspirating,  he started choking, he was turning blue and they just kept going.  It was one of the most excruciating things I have ever witnessed.  I really didn’t want to go back to Akron Children’s hospital.  I love our cardiologist there but I am not overly confident in the rest of the hospital.  But we really didn’t have much of a choice.  So Logan was taken by ambulance to the hospital and we followed by car.  What they were worried about was an obstruction in his intestines.  These kids have a high likelihood of having their intestines malrotated and they can easily get blocked because of that.  The ER Dr. at the first hospital thought his stomach felt distended and it was likely he had an obstruction.  When we got to the Hospital’s ER they weren’t nearly as concerned.  They didn’t think he felt distended at all.  They did some x-rays and had them sent out to be read.  It came back that there could possibly be something wrong but it wasn’t life threatening.  So anyway, they admitted him to the floor.  The next morning he had an upper GI done to figure out exactly what was going on.  I took forever almost 3 hours.  It turns out his intestines are malrotated and that he has a small hiatal hernia (when your stomach moves up into your chest).  We had to wait almost all day to find out if he was going to need surgery on his intestines right away or not.  Luckily it turned out that he didn’t.  We had to stay in the hospital for another 1 or 2 days (I can’t even remember now) just make sure that he could keep food down and then we were sent home.  So basically we have no idea what caused his pain, the radiologist said he could have some intermittent blocking that fixes itself, and his cardiologist said it could’ve been so many different things.  We do know that kids with midline stomachs have GI problems so it could just be his strange anatomy.  I was so glad to get him out of the hospital without having surgery, his cardiologist said you never know how his heart would handle any kind of surgery right now.  When we got back home he has some intermitten episodes of fussiness and vomiting but overall has been fine.  As long as he is keeping at least half his food down and is still growing I am not concerned.

4 thoughts on “Back in the Hospital.”

  1. Hi Kristen,

    I am so glad you all are home and Logan is hopefully feeling a whole lot better. I get so worried about the possibility of taking Hope to the ER…I just know that they will not know what to do with her. I can picture the scene in my head that you went through with trying to get an IV. I have to tell everyone that the best place to put it is her head and they still try everywhere else before finally figuring out that I might know what I am talking about.

    I hope Logan is feeling better and whatever it was stays away.

  2. I am so sorry that Logan has been having such a hard time. Poor little guy! 😦 We are praying hard that he will continue to improve and not have to have surgery any time soon. Caylen had her intestines re-rotated at five days old. She had an NG tube until she was nine months old. We are so fortunate she started eating and we didn’t have to have a button put in. However, due to her intestines having been malrotated, she has constant, sometimes, severe issues with constipation. Her doctors have told us this is not unusual in kids with heterotaxy.

    I also HATE when nurses make things so much worse trying to put in IV’s. Unless it’s life threatening, they get two tries and then we call for a doctor to do it. We have been through times like that (like in Michigan for her OHS and we finally had to physically restrain the phlebotomist to get her to stop trying on Caylen). Our kids go through so much, why they have to make it worse is just beyond me.

    Please let me know if you ever need to talk or need a shoulder. Caylen is three now and as Gilly said before, there are so few of us whose kids have this DX, it’s nice to know we aren’t alone.

    Hugs and blessings –
    Erin

  3. Kristen, please excuse my ignorance, but did the malrotation fix itself somehow? Or is it something he will be able to live with until it’s time for surgery?

    I’m sorry to hear that you had such unpleasant experiences trying to get Logan some help. I’m glad that you’re all back home now.

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