So Wed. we got up bright and early and left the house at 7AM, sat thru over an hour of rush hour traffic, and made our way to the Cleveland Clinic to get our second opinion from their GI Dr’s. I was pretty irritated by the time we got there because traffic was so bad but I was instantly put in a better mood when I saw that the Cleveland Clinic has valet parking. I love valet parking.
Even though Logan is barely three months old going over his medical history took over an hour. Poor little guy. This GI Dr. told us that they have two other kids with Heterotaxy and so they are pretty familiar with this condition. That really relieved me because there is nothing that is more off-putting then hearing Dr.’s say that they have never seen this before. We had one ER Dr. (a while back) come in and ask us if we knew that our child had Heliotaxy. That didn’t inspire much confidence. Anyway, they were very familiar with the associated GI problems and want to redo the upper GI tests and get some blood work on his liver because there is a small chance of a liver problem but most likely it would have shown clinical signs by now. They did tell us that if he is malrotated that he will need the Ladd’s procedure on his intestines, they said that was standard.
Logan had another good week without any major crying spells. Well, other than he cried thru the night before we went to the Clinic. He was awake more this week and cooing and talking a lot. He seems more interested in watching new things and looking at toys now. Here is a picture of Logan with his Great Grandma (the one who says that he is growing a spleen right now).
He really likes his Great Grandma….
Most of the time….
Thurs. he had another cardiologist appointment. His oxygen is still in the low 80’s which is very good. He had an echo done and everything looked OK except for his A/V Valve is now regurgitating moderately instead of mildly. Apparently this is not good and it may or may not be able to be fixed by the surgeon when he is in there doing the Glenn procedure. If blood is leaking down then the whole pumping system isn’t working strong and it needs to if he is to get the Fontan procedure that will ultimately allow him to live. The cardiologist said that it is common with these kids to have this problem and it will just be another hurdle for him. I don’t want hurdles, I just want valet parking please.
He upped his beta blocker medication and said he is hoping that buys us another 3 to 4 weeks before anything has to be done.
He wants to see us back next week to get a pulse ox reading (just a little band-aid looking thing they wrap around his foot that tells them what his oxygen saturation is) and do an exam.