Poor Logan he is just miserable. We thought about taking him to the ER at about 4AM. He has so much gunk in his lungs and he is breathing pretty hard. He woke up about every 20 min. thru the night because every time he coughs it wakes him up. Pretty much that meant no sleep for us. He also does a lot better sitting up so I sat up on the couch and held him upright against my chest for half the night. I am really hoping this passes soon because it is really hard to watch him be this miserable.
It has been a rough week in the CHD community. Many babies have passed this week. One baby in particular really got to me though. He was recovering from an OHS and even though he had some complications he was doing well, eating, and would be going home soon. Then the parents decided to have him circumcised. They debated whether they should even do it but he was doing so well that they thought they might as well just get it over with. They proceeded with the circumcision knowing there was some risk as there is with anything having to do with these babies)but that is most likely would be fine. Well the circumcision was too much for his little body to handle, it caused too much bleeding for his heart and he arrested this morning at 9AM. He was pronounced dead at 10AM. What really struck me about this was how something so routine, so benign, can be deadly to heart babies. And now I just hear his cardiologist’s words echoing in my head, “…this is why I don’t want anyone to touch him…”
If you would like to leave support for the family that is so devastated right now by this loss you may do so here…http://fierceandfiesty.blogspot.com/2010/10/joshua-has-received-complete-healing-in.html