So after a few episodes of very heavy strained breathing and a few weeks of a lot of fussiness, Scott and I decided to buy a Pulse Ox machine for our home. I thought that if I could just see that his oxygen levels were OK, I could relax a little bit about whatever was going on with Logan. The Pulse Ox device is just a device that measures ones oxygen saturation (for adults it’s the little thing they put on your finger in the hospital.) Well, instead of making me feel better the pulse ox machine registered that Logan had oxygen saturations of 65 (FOR DAYS), we obviously got nervous and moved his cardiologist appointment up by one week.
So inevitably, I was very nervous about our appointment and expecting the worse and for Dr. Patel to find something really wrong with Logan during the echo.
Well it turned out Logan (as Dr. Patel put it) was trying to prove me wrong because not only was Logan NOT FUSSY AT ALL, during our apt. his O2 levels WERE 75. I couldn’t believe it. Now 75 is fantastic but it isn’t 65 either. The ideal oxygen saturation after a Bi-Directional Glenn Shunt would be 85, so there is something that is causing the O2 levels to be less than that. In Logan’s case it is because he is growing collaterals (tiny little veins) that are rerouting some oxygenated blood away from his lungs. If you think of a hose with holes in it, and trying to fill up a pool with that hose. That is sort of what is happening. The blood is coming out the holes/veins and taking a different path instead of going to his lungs. Since Logan’s oxygen is 75 we aren’t going to worry about trying to, plug those holes (coil those collaterals in the cath lab) right now, but just give his body longer to adjust. The reason he is growing the collaterals is because there is still some high pressure in his pulmonary artery so the blood is flowing down other smaller veins (because it is easier) and the very nature of this causes they veins to get bigger and then more blood flows thru them (you get the cycle here.)
So we just have to wait and see if these collaterals are really going desaturate him A Lot (like into the 60s) or if he will continue to hang out in the 70s. If he stays in the 70s we will wait until his next open heart surgery to deal with collaterals.
Logan is still a tiny little guy. He is weighing only 11 pounds at 7 months old. I think that officially has him completely fallen off the charts. He has grown in length though and is now 24 inches long (although, this is only the 2-3%) for length as well. He is still not able to hold his head up for more than a few seconds at a time and there is no sign of any sitting up or rolling over either. Now, cognitively he seems right on track. He is playing with toys, trying to drink out a cup, chewing on pieces of fruit, and he has Mommy completely wrapped around his finger. Whenever I walk in the room, people tell me he starts behaving very differently (as to get my attention.)
I do however, worry about him getting bored having to just lay there all the time, but at this point I am not sure about physical therapy. I don’t really want to stress him out, and part of me feels that whatever he is doing right now is what his heart can support, and that he will catch up when he is ready. Him staying on track cognitively is more important to me anyway, so if that is where all the energy is going right now, I am happy with that.
HAPPY NEW YEAR TO EVERYONE!!!