Mr. Pulse Ox

Mr. Pulse ox I am not happy with you today.

I think for the most part Logan is in the upper 60’s.  He will have periods of being in the low 70’s but for the most part he hovers right around 68-69. 

I heard back from Dr. Del Nido at Boston and he said that the cardiologist’s will be taking a look either today or tomorrow and then we will know what they want to do.  He said that they are going to want to do a cath to determine exactly where the scar tissue is and exactly how bad it is.  For those of you that don’t know or don’t remember a cardiac catheterization is to take more accurate pictures and collect more data such as pressures inside the heart.  They probably won’t know whether they need to operate or not until one of those is done. 

Dr. Patel is seeing Logan every week right now to make sure there aren’t any dramatic changes in him.  Last week when we he saw him, there wasn’t any and Dr. Patel didn’t do an echo just a clinical exam.  Tomorrow he sees him again and will most likely do an echo to see if there is any more scar tissue growing.  I think that Logan’s pulse ox is definitely worse even in the last two weeks but I am not sure if this is because of the scar tissue or from the collaterals.  His color at times just looks horrible.  Scott and I will look over at him and just shake our heads because he looks so purple. 

On a happier front, Logan is sooooo happy.  Is really a very happy baby.  He doesn’t know his oxygen levels suck.  He just laughs and plays all the time.  He is starting to get better head control which is great because he can get a better view of the world.  He is eating good.  About a jar of baby food a day.  He loves sweet potatoes, butternut squash, and bananas.  He is still quite sleepy.  He sleeps most of the day.  He usually has two ‘awake’ periods during the day; one in the morning and one if the afternoon, those last for 2-3 hours and then the rest of the day is spent sleeping.  He wakes up to eat or play for about 30-40 mn. and then goes back to sleep.  Many times he wakes up just to eat and then goes immediately back to sleep.  But he needs all the rest he can get, so I am not worried about that right now. 


I will let everyone know as soon as I hear anything from the team at Boston, and let you know how our appointment goes tomorrow.


3 thoughts on “Mr. Pulse Ox”

  1. It’s amazing how happy and oblivious babies can be. He is truly an inspiration. I hope you hear back soon from Dr Del Nido and get the ball rolling.
    I think of Logan often and I’m glad to see that despite adversity he’s a happy, content baby and is doing so well.

  2. I know Del Nido will get back to you soon…then it will be decision time again…YUCK. I so want to meet Logan before he heads back to Boston and hopefully we can get together soon…like before my family gets sick again. I would feel horrible getting him sick before his cath or another surgery.

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