Can’t believe it. Now Logan is sick. We went to the pediatrician yesterday to have him swabbed for RSV. If he has RSV Dr. Patel thinks it is safest if he is in the hospital. I just can’t believe it. This poor little sweet baby just never feels good. I am starting to wonder about PCD now. He has gotten sick so many times already in his 10 short months. It could also be that we are at the doctor’s office so often as well. That is truly where all the germs are.
(Taking the whole gang to the ped’s office)
When we went to the pediatrician’s office it was a little silly because they kept telling me his Pulse Ox (oxygen saturations) were 97%. I tried explaining to them that wasn’t accurate but they told me this was the best machine and this what it is reading (sigh….) This is a picture of him in the pediatrician’s office. Doesn’ this look the face of a baby with 97% oxygenation? Seriously come one….
Anyway, we got the results of the RSV part of the test back yesterday and he is neg. for RSV (thank god.) The rest of the test comes back this afternoon, I am not sure if there is any other illness that would require hospitalization or not, I just know Dr. Patel was very concerned about RSV.
Logan is just coughing and hacking and having a very hard time sleeping because of all the coughing. He isn’t eating much either (so I may have lost all my hard work…..)
Where is SUMMER????
I finally got an appointment with his GI doctor for 2 weeks from now. They must not be too concerned then. I don’t know how we could go from it’s an emergency to now it’s a two-week wait….
I am starting to really realize right now that Logan doesn not have just congenital heart disease this is Heterotaxy, a whole body disease. It’s so hard to figure out what is going on. To figure out what illnesses or infections can be deadly to him because of his no spleen, when is vomiting okay when it isn’t (vomiting is the first sign of a deadly intestinal blockage for him) then the rectal bleeding. It’s just so much to deal with. And the other day it seems like everything was happening all at once. He was vomiting, coughing, had rectal prolapse, fast breathing, everything I was so scared and very overwhelmed. I can handle one of these issues at a time but when they all occur at the same time I get very nervous. The most frustrating thing is that then everyone wants to send him to the most dangerous place for him to be the ER. I really need to find doctors that are willing to fit him into their office schedules when there is a problem. So far I have not had this luck. Not sure what I am going to do about that.
We had a very tough week at the Spyker household and I am hoping that everyone starts feeling better by this weekend (including myself…I caught whatever Logan has, which in a way was good because then I know exactly what he has!)