Meet Baby Pierce

Meet Baby Pierce.  He has a very similar type of Heterotaxy that Logan has.  Jessamyn (Pierce’s Mother), myself, and many others fought like mad to get him transferred to a heart center that has more experience with  these types of children.  That was going to be his only shot at living.  Pierce is so sick that even in the best hands his recovery is going to be very hard.

For a Preview of the CNN piece please veiw the short promo piece on the below link (takes a little time to load…) 
http://i.cdn.turner.com/cnn/.element/apps/cvp/3.0/swf/cnn_416x234_embed.swf?context=embed&videoId=health/2011/12/16/pkg-saving-baby-pierce.cnn
Finally, after the fight of our lives, Pierce arrived safely in Boston last Fri. night.   He is going into surgery today.  Today is the day that Pierce’s heart will get fixed.  Please keep this family in your hearts today as Pierce under goes a long long long surgery.

For the full story on Pierce please tune in to Anderson Cooper 360 on CNN tonight.  This is a very important story.  This is a story not only about just Pierce but a story about how difficult our current medical system makes it to get our children the best care we can.  This is a story that affects us all.

And please remember to check out The Heterotaxy Network on FB we have a small but mighty group of heterotaxy families.   I can guarantee you that there is no group on the planet more knowledgable about heterotaxy than our humble group of families.

7 thoughts on “Meet Baby Pierce”

  1. Thank you for all you have done for Baby Pierce and the multitude of other HS babies. It was a privilege working with you. Advocating for Baby Pierce has given many more gifts to me than one can imagine.

  2. So I just heard on the news that Baby Pierce is doing great! That’s amazing! My son was diagnosed at 20 weeks gestation with congenital corrected transposition of the great arteries, VSD and PA. He underwent surgery on Sep 6, 2011 at just four days old, also at the Boston Hospital. Unfortunently, they cant fix my sons heart all at once. So he will be undergoing a few more surgeries in a couple of months. I absolutely LOVE the doctors at Boston Hospital; they are great people! Good luck to you and your son! Your story has truly given me hope ❤

  3. I still can’t get over the fact that one of the doctors that worked on Pierce graduated from a high school in the same area where Pierce lives in Indiana!

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