Logan has made so many strides lately! He is doing just terrific. One of the greatest things that we ended up doing was hiring a nanny. This was tough to do because its hard to turn over control, and it takes a lot for us heart Mom’s to trust anyone with our kids but it turned out to be the exact thing that everyone in our family needed. It is allowing me to work more, which has been very good for my mental health, and it has introduced someone to Logan that he doesn’t associate with any of his medical issues. Our new nanny has never given him meds, never seen him in the hospital, and never taken him to the doctor. Logan trusts her! And the best thing of all is that he has started to eat for her! it is very interesting because he still will not eat for me and he actually stops eating if I am in the room.
He is verifying that this is all psychological and not a physical issue. So I am making a point of not asking this nanny to ever give him medicines or be involved the his health issues, because he trusts her!
I think that is has been fantastic for him to be around a caring person that he feels 100% confident won’t try to force him to take medicine, force him to put on a pulse ox, or take him to get boo boos at the doctor. He has made so many strides since the arrival of our new nanny that it has made me realize how this whole journey has really affected him mentally.
(love being read too)
Now that he is getting more nutrition he is able to do physically advance as well. For the past few months he had been extremely frustrated because although he was mentally like a 20 month old, he was stuck physically in a 6 month old’s body. Him being able to move and explore has really opened up a whole new world for him and he is so happy about it.
He is sitting up very confidently and has figured out how to go from sitting to laying and vice versa. He is so so so very happy at this new ability. He feels like a real person now!
With his new-found independence and strength, going to the cardiologist has gotten to be a bit more of a struggle.
(EKG and Blood pressure)
Last check up was good. O2 is is decent (mid to upper 70’s) sometimes hitting 80 sometimes hitting 70. He definitely looks blue when he is moving around and playing. His feet get very blue, and the area around his mouth and eyes as well.
He currently weighs 9.1 kilo (20 pounds) and is 30 inches in length. He is the sweetest little thing you could ever meet. I wish everyone could meet him.
The last week we had a stretch of weather out of the blue where it was 75-80 degrees. Logie had the time of his life. Last summer his body couldn’t handle heat and he would just sweat like mad if he was in the sun.
(he didn’t eat these apples btw….)
(we actually had to bring this picnic table inside because we couldn’t get him to come in without it)
Ethan is also enjoying Logan now that he is able to interact with him more. Ethan almost has a bit of a playmate!
Still working on figuring out a surgery date. Couldn’t tell you if its going to be April or June at this point. I am hearing something different from everyone that I talk to. Trying my hardest to figure all that out now.