Just wanted to share a quick video of Logie playing in his little pool!
He has been having so much fun with the nice weather we have been having.All of this exercise has really built him a little appetite too. He is eating foods that he normally wouldn’t even try, he is loving mashed potatoes right now! We have a cardiology appointment this afternoon, just a check up, I don’t anticipate anything to have changed. We are still looking at his Fontan around June 13th. It is coming up really fast and I am trying my hardest to not dwell on it, but to just enjoy these last few weeks we have before surgery. I anticipate that going thru this surgery will revert him back to the scared and timid boy he was just 6 months ago, so I am trying to get him outside and playing as much as possible.
Here are some more cute pics…
First time in the sandbox. At first he wasn’t so sure about the sand! Now he loves it and whines to go in.
First trip down a slide with Mommy of course! He loved it!
He looooooves to flip the pages of books and to be read to. Ethan doesn’t have the patience to sit and read books, so I am loving being able to cuddle Logie and read books. His favorite are Dora The Explorer books. He is always so surprised to see Dora in books, he looks up at the TV and then back at the book, it’s too cute.
Still drinking out of a little baby bottle and scrunches his feet up like a newborn. I am completely okay with this. The bottle issue is not even on my radar screen as issues to worry to about. It also is how I “secretly” give him his heart meds 🙂
I also wanted to remember Sweet Elise. She passes away 2 weeks ago, and her loss was just devastating to me. She has the same diagnosis as Logan and was born a couple of months after him. Her Mom became one of my closest Heart Mom friends, and we watched in amazement as our two kids followed such similar paths. This is a family that I have been in constant contact with for over 1.5 years. Elise’s Mom Tessa, has provided me with so much support and encouragement thru Logan’s battles. My heart is broken for Tessa and her family.
Elise went in to have a cardiac cath and her Fontan (third stage surgery), and never got extubated (breathing tube taken out) after the cath. Her heart was too weak to go one to the Fontan. Elise is Logan’s heterotaxy sister and she is greatly missed. Elise is forever in our hearts….